Funny, how the smallest things become landmarks. Today, a sweet girlfriend dropped off a chai before heading to Bible Study Fellowship. Before I knew it, Schaeffer girl a had grabbed the chai & was sucking it down. Another small thing, but encouraging. It is so good to see her 'eating' anything with calories--I'll settle for cookies, doughnuts or even chai.
Most of the disgusting bodily functions have ceased-she'll still have the occasional diarrhea, but it has transitioned from 'growler' stage (where all garments are instantly covered) to a much more manageable state.
Her energy seems to be picking up, but I also know that we've basically been home and done nothing since Saturday. So, we need to continue to be very judicious with our exertion level & the choices we make for activity.
I've (Kate) been thinking a lot about our appointment on Friday. I know that we are putting much stock in this one hour, brief visit with a new doctor. I want to be careful to not put so much expectation on this one event & hoping for a diagnosis, that when it doesn't happen (the way I want it to), it doesn't leave us devastated.
So, I'm praying in a new way today. Would it still be MY choice for Schaeffer to receive a diagnosis & treatment plan-yes. But, it may not be God's plan--and that has to be OK with me. Would I choose to schlep to every prestigious hospital in the U.S. until we get an answer for my beloved--Yes. But, this may not be what God has for us.
So, again we wait. But knowing that I'm waiting on the God of the universe-the God who gives Schaeffer life & breath-the God who loves me so much he sacrificed his own Son... I can wait.
"We pray that you'll have the strength to stick it out over the long haul-not the grim strength of gritting your teeth but the glory-strength that God gives. It is strength that endures the unendurable and spills over into joy." Col 1:11 MSG
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